“When you have a rare disease, you face two battles. One being the disease itself, and the other, living in a world where few people understand what you’re up against.”
- Unknown
Welcome to the corner of my page, “The Rare Of It All”, where my genes are a bit glitchy, my head's a little foggy, and where Jesus shows up in the middle of it, still. This isn’t just a website about rare disease, chronic illness, and mental health, but it’s a warm place you can come to when you need the reminder you aren’t alone, when you have questions, and when the world feels a little wobbly. So, grab a coat blanket, an iced coffee, take your meds, say a prayer, and let’s be friends! You are seen. You are loved. And trust me….you are not alone.
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